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Aging with Dignity The Five Wishes document helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It is unique among all other living will and health agent forms because it looks to all of a person's needs: medical, personal, emotional and spiritual. Five Wishes also encourages discussing your wishes with your family and physician.
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Aging With Dignity PO Box 1661 Tallahassee, FL 32302-1661 Telephone: (888) 5WISHES (594-7437) Fax: (850) 681-2481 |
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Caregiver.com This website offers a multitude of materials for caregivers as well as the opportunity to subscribe to a free online e-newsletter. The site also includes featured articles from Caregiver Magazine. Caregiver.com hosts both caregiver
conferences as well as an online chat board. Worth a visit if you are
providing care for a loved one. |
Caregiver Media Group Caregiver.com 3005 Greene Street Hollywood, FL 33020 Telephone: (800) 829-2734 Fax: (954) 893-1779 http://www.caregiver.com |
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Caringbridge.org
CaringBridge® is a nonprofit 501(c)(3)
organization offering free personalized websites to those wishing to
stay in touch with family and friends during significant life events.
Their mission is to bring together a global community of care powered by
the love of family and friends in an easy, accessible and private way.
CaringBridge authors quickly and easily create personalized websites
that display journal entries and photographs. Well-wishers visit the
site to read updates and leave messages in the Guestbook. |
CaringBridge 1995 Rahn Cliff Court Suite 200 Eagan, MN 55122 Telephone: (651) 452-7940 Fax: (651) 681-7115 http://www.caringbridge.org |
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Caring Connections
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National Hospice and Palliative Care
Organization 1700 Diagonal Road, Suite 625 Alexandria, Virginia 22314 Telephone: (703) 837-1500 Fax: 703/837.1233 (800) 658-8898 |
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Centers For Disease Control And
Prevention (part of the Department of Health and Human Services)
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Centers for Disease Control and Prevention 1600 Clifton Road 600 Clifton Road Atlanta, GA 30333, U.S.A Telephone: (800) 311-3435 |
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Consumer Reports Best Buy Drugs
Helps you learn about more affordable drug treatment options to
discuss with your doctor |
http://www.crbestbuydrugs.org/ | |||
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Discovery Health TV Diseases and Conditions (ignore the ads…)
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http://health.discovery.com/encyclopedias/otherdatabases.html | |||
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Family Caregiving 101 "It’s not all up to you" campaign
The site, sponsored by the National Family
Caregivers Association and the National Alliance for Caregiving, is
designed to provide caregivers with the basic tools, skills and
information they need to protect their own physical and mental health
while they provide high quality care for their loved one. It is also a
place for family caregivers to return again and again as new levels of
caregiving are reached. Advertising messages, crafted with the
assistance of family caregivers themselves, assure caregivers across
America that they are not alone, and encourage caregivers to take better
care of themselves and their loved one by visiting the site and asking
for help. |
http://www.familycaregiving101.org | |||
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Five Criteria for Evaluating Web Pages A resource for you to use when evaluating the web content for your own research "Teaching undergrads WEB evaluation: A
guide for library instruction." |
Olin and Uris Libraries Cornell University Ithaca, NY 14853 http://www.library.cornell.edu/olinuris/ref/research/webcrit.html |
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Growthhouse.org This website offers excerpts from the book, Handbook for Mortals as well as “Fast Facts and Concepts" is a series of peer-reviewed, one-page outlines of key information on important end-of-life clinical topics for educators and clinicians. I found both to be interesting and informative. |
Telephone: (415) 863-3045 http://www.growthhouse.org |
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HealthGrades
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HealthGrades, Inc. 500 Golden Ridge Road, Suite 100 Golden, CO 80401 Telephone: (303) 716-0041 |
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Healthfinder (key resource for finding the best government and nonprofit health and human services information on the Internet)
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healthfinder P.O. Box 1133 Washington, DC 20013-1133 |
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Health Literacy
Updated by Penny Glassman, Technology
Coordinator, National Network of Libraries of Medicine New England
Region, Shrewsbury, MA
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National Network of Libraries of Medicine National Network Office National Library of Medicine 8600 Rockville Pike, Building 38, Room B1-E03 Bethesda, Maryland 20894 http://nnlm.gov/outreach/consumer/hlthlit.html |
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Hospicecare.com
This website offers huge selection of
information about hospice & palliative care services including contact
information for state-specific resources and a newsletter. |
International Association Hospice and
Palliative Care 5535 Memorial Drive Suite F - PMB 509 Houston TX 77007 USA Telephone: (866) 374 2472 Fax: (713) 880-2948 http://www.hospicecare.com/contact.htm |
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Hospital Compare (provided by the Unites Sates Department of Health and Human Services) This website was
created through the efforts of the Centers for Medicare & Medicaid
Services (CMS), an agency of the U.S. Department of Health and Human
Services (DHHS) along with the Hospital Quality Alliance (HQA). Hospital
Compare has quality measures on how often hospitals provide some of the
recommended care to get the best results for most patients. You will see
some of the recommended care that an adult should get if being treated
for a heart attack, heart failure or pneumonia, or having surgery. |
The U.S. Department of Health and Human
Services 200 Independence Avenue, S.W. Washington, D.C. 20201 Telephone: (877) 696-6775 http://www.hospitalcompare.hhs.gov/ |
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Joint Commission On Accreditation Of Healthcare Organizations (JCAHO)
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The Joint Commission One Renaissance Boulevard Oakbrook Terrace, IL 60181 Telephone: (630) 792-5000
http://www.jointcommission.org/AccreditationPrograms/ |
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MDLinx (a drug-sponsored site so be prepared for advertising)
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MDLinx 1232 22nd Street, NW Suite 200 Washington, DC 20037 Telephone: (202) 293-2288 Fax: (202) 293-1690 |
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Medem, Inc. (a physician sponsored site connecting physicians and patients online)
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649 Mission Street 2nd Floor San Francisco, CA 94105 Telephone: (877) 926-3336 Fax: (415) 644-3950 |
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Medline Plus (a service of the U.S. National Library of Medicine and the National Institutes of Health – your tax dollars at work)
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http://www.nlm.nih.gov/medlineplus/druginformation.html |
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Medscape Medical News (online medical news board written by and for the medical community)
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http://www.medscape.com/medscapetodayhome?src=hdr |
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Medscape Palliative Care Resource Center
This Resource Center offers a collection of
the latest clinical information on end-of-life care for adults and
children, as well as information on supporting caregivers. |
http://www.medscape.com/resource/hospice | |||
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National Hospice and Palliative Care
Organization (NHPCO)
NHPCO is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. On this site you can -
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National Hospice & Palliative Care
Organization 1700 Diagonal Road Suite 625 Alexandria, Virginia 22314 Telephone: (703) 837-1500 Fax: (703) 837-1233 http://www.nhpco.org |
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National Public Radio (NPR) Medical Newsletter
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635 Massachusetts Avenue, NW Washington, D.C. 20001 NPR Directory Telephone: (202) 513-2000 Fax: (202) 513-3329 |
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Pain and Palliative Care Reporter The Palliative Care Reporter collects and disseminates legal materials and links that will assist attorneys and other advocates for -
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Pain and Palliative Care Reporter Bazelon Center for Mental Health Law 1101 Fifteenth Street NW Suite 1212 Washington D.C. 20005 Telephone: (202) 467-5730 Fax: (202) 223-0409 http://www.painlaw.org |
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Patient Advocate Foundation
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700 Thimble Shoals Blvd. Suite 200 Newport News, VA 23606 Telephone: (800) 532-5274 |
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People’s Medical Society®
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P.O. Box 868 Allentown, PA 18105-0868 Telephone: (610) 770-1670 |
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United Health Foundation “Established in 1999 as a nonprofit, private foundation with a mission to support the health and medical decisions made by physicians, health professionals, community leaders and individuals that lead to better health outcomes and healthier communities.” Provides annual report entitled,
America's Health: State Health Rankings |
9900 Bren Road East Minnetonka, MN 55343 |
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U.S. Living Will Registry
“The mission of the U.S. Living Will Registry is to promote the use of advance directives through educational programs, and to make people’s health care choices available to their caregivers and families whenever and wherever they are needed, while maintaining the confidentiality of their information and documents.”
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U.S. Living Will Registry 523 Westfield Avenue P.O. Box 2789 Westfield, NJ 07091-2789 Telephone: (800) LIV-WILL (800) 548-9455 Fax: (908) 654-1919 |
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Your Personal Medical Assistant (PMA) A system designed so that you can easily organize and access your health-related documents and information. Your PMA contains everything you need in one easy-to-find and easy-to-remember location. Why do you need this? Your PMA organizes your health information and makes your critical information portable for easy reference during appointments.
Order via website or or contact Strong
Consulting. |
Strong Consulting 3 Castle Hill Court Vallejo, CA 94591 Telephone: (888) 332-6297 |
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Web MD Health (a website by “trusted research organizations, manufacturers, and other leaders dedicated to treating and managing your health”)
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111 8th Ave 7th Floor New York, NY 10011 Telephone: (212) 624-3700 |
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home the book the author expectations reviews resources tools terminology medical updates media kit |
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